We joined Corpal around 15 years ago and we became committee members a couple of years after that. Our daughter was diagnosed with complete ACC at birth and although she always reached her developmental milestones and went to mainstream education, we have always appreciated the emotional support and understanding of an extended family through Corpal. Life with an ACC’er certainly brings challenges but we have learned, and impress upon her, that she will develop at a pace which is right for her and she may need (and have to ask for) some extra help. Every day she amazes us with what she is able to achieve. We are infinitely proud of her. Parents of children with ACC and adults with ACC too, constantly have to explain their condition to friend and family as well as clinicians! We became committee members to help raise awareness of ACC and offer support to affected families.