Meet the Team

If you would like to contact any of the Team individually, please put the attention of that person in the Subject line of the email.

We also have a selection of Volunteers who help Corpal in many ways from helping out at events or helping us source venues, and information relevant to our members.

If you would like further information or would like to become a Volunteer please email info@corpal.org.uk.

Aspa Psaradellis - Chairperson

Aspazia Psaradellis
Chairperson/
Trustee

   

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Training to be a clinical (radiation) oncologist. Aspazia lives in Surrey with her husband, three-year old daughter, and 16 month old son who has complete ACC. Aspazia has a mission to change how ACC is perceived and interpreted. She has a special interest in school-age children with ACC and how they, their parents and teachers can be helped.

Tom Deevy / Helen Deevy
Treasurer & Trustee/
Database Manager & Trustee

   

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We joined Corpal around 15 years ago and we became committee members a couple of years after that. Our daughter was diagnosed with complete ACC at birth and although she always reached her developmental milestones and went to mainstream education, we have always appreciated the emotional support and understanding of an extended family through Corpal. Life with an ACC’er certainly brings challenges but we have learned, and impress upon her, that she will develop at a pace which is right for her and she may need (and have to ask for) some extra help. Every day she amazes us with what she is able to achieve. We are infinitely proud of her. Parents of children with ACC and adults with ACC too, constantly have to explain their condition to friend and family as well as clinicians! We became committee members to help raise awareness of ACC and offer support to affected families.

Joanne Carty - Trustee

Joanne Carty
Public Relations/
Trustee

   

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I have been a member since 2009 and as a committee member since 2017. I have attended many of the Family Get-togethers over the years. My teenage daughter has ACC plus other disabilities including Hydrocephalus, Epilepsy, and Autism. I was lucky enough to have 5 year career break when she was born and I firmly believe this enabled me to be fully engaged with her physical and social development. Despite a very bleak prognosis and extreme encouragement to terminate the pregnancy; she has exceeded all expectations and is an amazing daughter and sister to her brother. I am always looking forward to meeting other members and raising the profile of Corpal.

Rachel Watson -Trustee & Adult with ACC

Rachel Watson
Family contact/
Trustee

   

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I am a young adult with ACC and the have taken on the role of the Scotland Contact for Corpal. I became involved with Corpal a few years ago when I joined the Facebook group which mum told me about. I reached all my milestones on time although I did go to speech therapy it is not confirmed my speech was affected by the ACC. I was told about the condition when I was 8 years old. At school I had extra help. I had someone scribe for me if the teacher was talking and we had to copy something from the board. I was bullied at high school but I had a group of supportive friends. I passed my exams at school and two college courses. I find it difficult to talk to new people and start conversations, I don’t always know if someone is joking or serious and when I was younger I didn’t understand body language or facial expressions. I am a volunteer for a charity shop and also a Heritage Centre. I would like to eventually have a job and was recently put on a waiting list for supported housing.

fbt

Keren Wyllie
Aicardi Syndrome contact/
Trustee

   

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Hello, I’m Keren and I live with my husband and two daughters in Stirling. My youngest, Runa, was diagnosed with Aicardi syndrome when she was 17 weeks old in May 2018. I am the Scottish Aicardi syndrome contact for Corpal and I am happy to be contacted by families and individuals looking for support and information.

Jean Dalton - Administrator and Family Contact

Jean Dalton
Administration Officer &
Family Contact Co-ordinator

   

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I have been involved with Corpal for around 22 years now, initially as a member then an active member of the committee for over 15 years. My daughter who is now nearly 30 years, was diagnosed with dysgenesis of the CC, epilepsy, hemispherical cysts and a balanced translocation of the 1 and 12 chromosome. After a short break I returned to Corpal a couple of years ago as their administration officer and family contact.

Rhonda Booth 1

Dr Rhonda Booth
Research Consultant

   

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I am a Research Psychologist and Senior Teaching Fellow at Great Ormond Street Institute of Child Health, University College London (UCL). I have been involved with Corpal since 2005 when I began working on a research project comparing the social and cognitive abilities of individuals with ACC to those with autism spectrum conditions and typical development. I was very taken by the level of dedication of the Corpal Committee to help families to understand and support their loved ones affected by ACC. I also learnt about the struggles families often face in getting acknowledgement and support within the education system, despite the hard evidence of a brain difference in their child. I came on board as Corpal’s Research Consultant with the aim to help inform families on what we have learnt about ACC, particularly its impact on development and behaviour. I am a member of the International Research Consortium for the Corpus Callosum and Cerebral Connectivity (IRC5) and have attended their scientific meetings. I have presented my research findings at national and international conferences and helped increase awareness of the condition. I would like to develop a research programme within the UK to further understand why individuals with ACC have widely different symptoms and outcomes and how can we best support them. I am immensely grateful of the time families give to research and believe there is a lot we can learn from each other – thank you and I look forward to meeting you at future Corpal meetings!

Tereza

Tereza Rosikova
Social Media

   

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Hi, I’m Tereza, a student of Paediatric Neuropsychology. I came across AgCC as part of my research project and immediately fell in love with the incredible stories of the individuals with the condition but also their families and support teams. I’m lucky to be part of Corpal, helping to spread the word and support those who need it.