The last few months have been really busy for the Committee of CORPAL. There are many exciting ideas coming through which are progressing well. We hope you enjoy our latest newsletter. We are always happy to receive feedback so if there is anything you would like to say on this latest edition, please do not hesitate to contact us.
Also please note that on page 7 ‘Aicardi Syndrome’ Awareness Day.. this is NEW to the Aicardi Syndrome Community, so to help us raise even more awareness, we would love to hear from families who would like to share their stories of how Aicardi Syndrome has affected their lives. Keren has written a lovely book to get us started. Just email us with your story and we will do the rest.