IRC5 - PARIS JUNE 2019

Scientists and Clinicians from all over the World attended this event, with some very interesting Speakers.  Much research is being done on the Corpus Callosum.  Also a new family group was set up named 'The Bridge' to be available and to ask questions to Share with the IRC5 group to learn more.  More details of this and how questions can be submitted will be available shortly.

APRIL 2019 NEWSLETTER

Hello everyone!
Wow these last few months have been really busy for the Committee of CORPAL. There are many exciting ideas coming through that we are hoping to develop and grow in the next few months – you will all be informed as and when they arise.

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2020 Conference postponed, Regional Events now planned.

Sadly we are unable to organise a larger and longer Conference for 2020, but we hope to re think this for 2021, so please keep checking. We are disappointed that this could not be arranged, but mainly lack of support and funding. Corpal would have liked to secure a venue and offer members subsidised fees to attend, however unfortunately for the type of venue required and the amount of members replied, we could not commit the funds from Corpal at this time. Thank you all to those who repsonded. We will keep you updated.

To replace this, we are in the process of planning Regional Meetings throughout the UK. Recently there was an event in Blackpool which was open to the public as well as members. This was a successful day run by parents of a son with ACC. Corpal was represented by some of the committee and we are very grateful to Katy and Sean Thompson and the Lancashires Light House Radio for organising a fun day.  

Saturday 14th September 2019 - SCOTLAND - Edinburgh - Family get together.

Sunday 6th October 2019 -   DEVON - Exeter - Family Get together

Midlands and the Southern Area dates will be released in the new future.

We have received some offers of help for the above get togethers which we thank you for and a committee will be in touch when they have more details...Please accept our apologies if you have not heard from us, but I can assure you we have taken note of your offer.

 

REGIONAL EVENTS

SCOTLAND - SATURDAY 14TH SEPTEMBER 2019 - EDINBURGH - more details and location to follow shortly.

More family days in the planning - Details to follow.

SOUTH WEST - SUNDAY 6TH OCTOBER 2019 -  DEVON

The Imperial, Exeter. (close to Exeter St Davids Station) 11.30am - 3pm - More details to follow.

LANCASHIRE'S LIGHTHOUSE RADIO - FUNDRAISER

DO YOU LIVE IN THE NORTH WEST OF ENGLAND?

April 12/13th  2019

Why not join Lancashire's Lighthouse Radio on 13th April 2019, The Radio station will also be going live for 24 hours from 10am on Friday.  Saturday 13th April a Fundraiser for Corpal will be held at The Blackpool Tabernacle, Springfield Road, Blackpool. Refreshments and more information on the condition and some fun and games for the children. This event will start at Midday and finish around 4pm. 

Corpal will be fully supporting them with information, T shirts to purchase, and professionals will help out where they can on questions that need to be asked. 

If you need more information please visit their website www.lancashireslighthouseradio.co.uk or This email address is being protected from spambots. You need JavaScript enabled to view it.