About Aicardi Syndrome

What is Aicardi Syndrome?

Aicardi syndrome: a rare syndrome that occurs only in girls (boys are affected only in extremely rare and specific circumstances). Its main features are developmental brain malformations including ACC, seizures, learning difficulties and eye changes (chorioretinal lacunae).

Other problems associated with the condition are spinal or other bone abnormalities and hypotonia (floppiness). The condition is diagnosed by the means of an EEG (electroencephalogram), a brain scan and detailed examination of the eyes by an ophthalmologist (eye specialist).

Corpal has a dedicated phone line for Aicardi Syndrome manned by our Aicardi Syndrome contact Keren Wyllie. If you feel like you would benefit from an informal chat regarding Aicardi Syndrome please call  Mob: 07561 677583. If Keren unavailable, please leave your name and number and she will get back to you asap.

Informational Videos

Breastfeeding and Aicardi Syndrome: